• Evaluator-blinded trial evaluating nurse-led immunotherapy DEcision Coaching In persons with relapsing-remitting Multiple Sclerosis (DECIMS) and accompanying process evaluation: Study protocol for a cluster randomised controlled trial 

      Rahn, Anne Christin; Köpke, Sascha; Kasper, Jürgen; Vettorazzi, Eik; Muhlhauser, Ingrid; Heesen, Christoph (Journal article; Tidsskriftartikkel; Peer reviewed, 2015-03-21)
      Background: Multiple sclerosis is a chronic neurological condition usually starting in early adulthood and regularly leading to severe disability. Immunotherapy options are growing in number and complexity, while costs of treatments are high and adherence rates remain low. Therefore, treatment decision-making has become more complex for patients. Structured decision coaching, based on the principles ...
    • Informed shared decision-making programme on the prevention of myocardial infarction in type 2 diabetes: A randomised controlled trial 

      Buhse, Susanne; Muhlhauser, Ingrid; Heller, Tabitha; Kuniss, Nadine; Muller, Ulrich; Kasper, Jürgen; Lehmann, Thomas; Lenz, Matthias (Journal article; Tidsskriftartikkel; Peer reviewed, 2015-11-13)
      Objective: To evaluate an informed shared decisionmaking programme (ISDM-P) for people with type 2 diabetes under high fidelity conditions. <p>Design: Randomised, single-blinded trial with sham control intervention and follow-up of 6 months. <p>Setting: Single-centre diabetes clinic providing care according to the national disease management programme in Germany. <p>Participants: 154 people ...
    • MAPPinfo, mapping quality of health information: Study protocol for a validation study of an assessment instrument 

      Kasper, Jürgen; Lühnen, Julia; Hinneburg, Jana; Siebenhofer, Andrea; Posch, Nicole; Berger-Höger, Birte; Grafe, Alexander; Keppler, Jan; Steckelberg, Anke (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-11-03)
      <i>Abstract</i> - Introduction Health information is a prerequisite of informed decision-making. Criteria for development, content and presentation have recently been published in a corresponding guideline. Within a systematic search, 27 relevant checklists were identified, none of them, however, complying with the guideline or providing reasonably operationalised measurement items. Therefore, a ...
    • A new graphical format to communicate treatment effects to patients—A web-based randomized controlled trial 

      Kasper, Jürgen; van de Roemer, Adrian; Pöttgen, Jana; Rahn, Anne; Backhus, Imke; Bay, Yasemin; Köpke, Sascha; Heesen, Christoph (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-07-17)
      <p><i>Objective</i>: Patients making treatment decisions require understandable evidence‐based information. However, evidence on graphical presentation of benefits and side‐effects of medical treatments is not conclusive. The study evaluated a new space‐saving format, CLARIFIG (clarifying risk figures), aiming to facilitate accuracy of comprehension.</p> <p><i>Methods</i>: CLARIFIG displays ...
    • Ready for SDM- evaluation of an interprofessional training module in shared decision making – A cluster randomized trial 

      Kienlin, Simone Maria; Stacey, Dawn; Nytrøen, Kari; Grafe, Alexander; Kasper, Jürgen (Journal article; Tidsskriftartikkel; Peer reviewed, 2022-03-17)
      Objective: Ready for SDM was developed in Norway as a comprehensive modularized curriculum for health care providers (HCP). The current study evaluated the efficacy of one of the modules, a 2-hour interprofessional SDM training designed to enhance SDM competencies.<p> <p>Methods: A cluster randomized controlled trial was conducted with eight District Psychiatric Centres randomized to wait-list ...
    • Ready for SDM: evaluating a train-the-trainer program to facilitate implementation of SDM training in Norway 

      Kienlin, Simone Maria; Poitras, Marie-Eve; Stacey, Dawn; Nytrøen, Kari; Kasper, Jürgen (Journal article; Tidsskriftartikkel; Peer reviewed, 2021-04-30)
      Background - Healthcare providers need training to implement shared decision making (SDM). In Norway, we developed “Ready for SDM”, a comprehensive SDM curriculum tailored to various healthcare providers, settings, and competence levels, including a course targeting interprofessional healthcare teams. The overall aim was to evaluate a train-the-trainer (TTT) program for healthcare providers wanting ...
    • Ready for shared decision making: Pretesting a training module for health professionals on sharing decisions with their patients 

      Kienlin, Simone Maria; Nytrøen, Kari; Stacey, Dawn; Kasper, Jürgen (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-03-01)
      <i>Introduction</i> - While shared decision‐making (SDM) training programmes for health professionals have been developed in several countries, few have been evaluated. In Norway, a comprehensive curriculum, “klar for samvalg” (ready for SDM), for interprofessional health‐care teams was created using generic didactic methods and guidance to tailor training to various contexts. The programmes adapted ...
    • Risk knowledge in relapsing multiple sclerosis (RIKNO 1.0) - Development of an outcome instrument for educational interventions 

      Heesen, Christoph; Kasper, Jürgen; Fischer, Korbinan; Köpke, Sascha; Rahn, Anne; Backhus, Imke; Poettgen, Jana; Vahter, Liina; Drulović, Jelena S.; Van Nunen, An; Beckmann, Yeşim Yetimalar; Liethmann, Katrin; Fulcher, Gary; Solari, Alessandra (Journal article; Tidsskriftartikkel; Peer reviewed, 2015-10-02)
      Background Adequate risk knowledge of patients is a prerequisite for shared decision making but few attempts have been made to develop assessment tools. Multiple Sclerosis (MS) is a chronic inflammatory disease of young adults with an increasing number of partially effective immunotherapies and therefore a paradigmatic disease to study patient involvement. <p>Objective/methods Based on an item ...
    • Statusbericht aus Norwegen: Implementierung von Patientenbeteiligung im norwegischen Gesundheitswesen 

      Kasper, Jürgen; Lager, Anne Regine; Rumpsfeld, Markus; Kienlin, Simone Maria; Smestad, Kristine Hoel; Bråthen, Tone; Ankell, Holly; Knutsen, Tore; Kløvtveit, Rune; Gulbrandsen, Pål; Vandvik, Per Olav; Heen, Anja Fog; Flottorp, Signe; Tollåli, Geir; Eiring, Øystein (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-05-22)
      Norway has traditionally high standards regarding civil rights particularly emphasizing equal access to societal resources including health care. This background and the health care system’s centralized national organization make it perfectly suited for implementation of shared decision making (SDM). In recent years, great efforts have been made by policy- makers, regional health authorities and ...
    • Subjective and objective knowledge and decisional role preferences in cerebrovascular patients compared to controls 

      Riechel, Christina; Alegiani, Anna Christina; Köpke, Sascha; Kasper, Jürgen; Rosenkranz, Michael; Thomalla, Götz; Heesen, Christoph (Journal article; Tidsskriftartikkel; Peer reviewed, 2016-08-02)
      Background: Risk knowledge and active role preferences are important for patient involvement in treatment decision-making and adherence. Although knowledge about stroke warning signs and risk factors has received considerable attention, objective knowledge on secondary prevention and further self-esteem subjective knowledge have rarely been studied. The aim of our study was to investigate knowledge ...
    • Sykepleiere trenger kompetanse i samvalg 

      Kienlin, Simone Maria; Smedsrød, Mirjam Lien; Eide, Hilde; Kasper, Jürgen (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-11-30)
      Sykepleiere må i større grad bidra til å øke kvaliteten på beslutninger som angår pasientens helse. Samvalg skal være det normale i helsetjenesten, og sykepleiere bør derfor få muligheten til å tilegne seg ny kunnskap og utvikle nye ferdigheter. Både i grunnog videreutdanninger samt i spesialist- og primærhelsetjenesten må vi legge vekt på å utvikle sykepleiernes samvalgskompetanse.
    • Training doctors briefly and in situ to involve their patients in making medical decisions—Preliminary testing of a newly developed module 

      Kasper, Jürgen; Liethmann, Katrin; Heesen, Christoph; Reissmann, Daniel R; Geiger, Friedemann (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-05-18)
      <p><b>Objective</b>: To carry out preliminary evaluation of a training module for doctors to enhance their ability to involve their patients in medical decision making. The training refers to the shared decision-making (SDM) communication concept.</p> <p><b>Methods</b>: The training module includes a comprehensive manual, a corresponding video tutorial with communication examples and a 15-minute ...
    • Training in shared decision-making for registered nurses taking a master’s degree and/or a postgraduate programme 

      Kienlin, Simone Maria; Amro, Amin Abdul-Galeel; Øverlie, Anne; Kasper, Jürgen (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-01-03)
      Background: Registered nurses play a decisive role in supporting patients to participate in decisions on their own health, also referred to as shared decision-making. Official recommendations and up-to-date knowledge demonstrate that, although shared decision-making is necessary for patients, there are few training programmes within or outside the education system that can meet this need for ...